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" I'm sorry, but you have Cervical Cancer "


          Those words will haunt me the rest of my life.  As my fiancé held my hand my insides went numb. I seemed to have also lost my hearing, because I could see the doctor talking but I couldn’t hear her voice.  When we walked out of the doctor’s office we sat on a brick wall that lines the parking lot.  It was warm & breezy, my eyes were tearing yet I was feeling nothing. He held me and said we’ll get through this. “We’ll” I thought, he doesn’t have Cervical Cancer, I do.

That’s when the pity party began.  Why me, why always me? Let’s just say I’ve been medically challenged throughout my life, my GP always told me he had to pull the books out whenever I got sick because it was never anything simple. But Cancer, it’s such a scary word.  Some people will not even say the word itself, they refer to it as the “Big C”.

As I lay in bed that night I had already given up. Ok God, you want me, then take me, I’m not having surgery, what will be will be. Then I woke up in the morning terrified. Was I dreaming all this? I had just gotten two puggles, my babies.  A brother and sister I named Brewster & Maggie Mae, they were 3 months old and needed me.  I had wanted them for so long and now this.     

As the days and weeks went by I wanted to absorb as much information about Cervical Cancer as I could. The doctor had also suggested removing my cervix as another option, but then the concern of vaginal cancer would follow. Great! Keep the cervix, have surgery and continue to be tested every three months and let the cervix be a sponge for the cancer, or have it removed and face another cancer that I couldn’t really control.  Yes, I said control! If the cancer keeps attacking the cervix it can be removed and new cells will replace it, hopefully healthy ones. If it is removed I face a 50/50 chance of losing my sex drive.  What? That made my mind up really quick.

So, back to the internet I went. As I went from site to site there was information galore, but one site said one thing, another site said another thing, and my doctor said yet a third thing.  This was not going to be an easy journey.  Sometimes too much is really too much. If you trust your doctor, you need to let them guide you into the right decisions for you as an individual.

I trusted my doctor entirely. So, it was off to surgery. Cancer out, cervix in! The first couple days after the surgery are a little blurred, but trust me, take the pain pills. So now I go every 3 months, that anticipation of watching the calendar, having the pap screening done, and then waiting. Tick Tock Tick Tock, those 3 months fly by, but waiting for those results seems like a lifetime. For now, my energy, will, determination & strength are focused on this foundation by raising awareness of the importance of pap screening; early detection and helping women and their loved ones understand they are not alone.  (1/8/08)

Greetings – I would like to share with you some of the things that have been going on in my life.  All summer I have been on a campaign throughout the suburbs of Chicago on Saturdays, visiting different communities spreading the word of Awareness for Cervical Cancer prevention, including stressing to women the importance of their getting PAP & HPV testing. I have met so many wonderful, funny, informative, generous and caring people. I have been honored and humbled to have heard stories from so many women about themselves, and even from men, sharing their stories of loved ones.

I have learned also that this is a controllable cancer.  I have learned since the onset of my diagnosis how common HPV is. 80% of all women will get one or more types of genital HPV at some point in their lives.  I’ve also learned that there is no shame in Cervical Cancer, and that there is no reason to think I caused the condition.  This was something that I was dealing with when first diagnosed.

We have also redesigned the website to make it more user friendly and I am working on adding new updated information about prevention and awareness.  On a more personal note I am happy to say that with the exception of some dysplasia forming on my cervix, I have been Cancer free for a year. My little ones, Maggie Mae & Brewster have grown into the most adorable babies you’d ever seen.  They are, in part, what have kept me going.  I have come to realize that creating this foundation is my purpose in life. I am going to New York in September to participate in a benefit walk for Cervical Cancer, and am looking forward to meeting the Founder of  that Cervical Cancer foundation.  In October I will travel to Los Angeles for the NCCC HPV/Cervical Cancer Conference. There I will be learning more about HPV, Cervical Cancer awareness, and listening to some amazing guests speak on these subjects.

For now I am busy preparing for our upcoming Fundraiser being held in November which is keeping me extremely busy.  So as I sign off for now, please remember to take the time and get your testing done, both HPV & PAP. It is so critical, especially HPV testing if you are over 30.  Take time to enjoy your life.  We wake up and have routines.  Try shaking that up a bit; drive a different way to work and actually enjoy the scenery, hug your friends, laugh – it really is good medicine.  Life is so very short, try not to wake up with any regrets.  I hope to see you at the fundraiser; every person can make a difference. (8/8/08)

            From time to time I will be adding other thoughts, sharing stories and helping in raising awareness. If you would like to share a part of your experience, or express a thought, I encourage you to do so. This will be our sounding board. Just as important as Breast Cancer, Children’s diseases, Colon cancer and a healthy heart, Cervical Cancer affects so many of us.  This is my cause, this is your cause. I am making lavender the new pink.
 

 

Wed 8/20/08 9:00 PM

Pam,

It was so wonderful to meet you at the Jewel!  I had no idea there was an organization for Cervical Cancer until we met.  I was thrilled!  Both my sister and I have been diagnosed but are cancer free, thank heaven. 

Thank you so much for starting My Day!  It's because of you, many women might beat the odds...:) :)

God bless,

Carletta (IL)

 

 
Sat 08/16/08 4:55 PM

My name is Nancy and my 30 year old daughter Susan was just diagnosed with cervical cancer. Susan is pregnant and due January 27th for c-section delivery. This will be her 3rd and final baby and I'm glad. Susan has had many  female problems for years and every doctor said something different, even a specialist. Susan lives in a small town in Gettysburg, SD but will come to Sioux Falls to see another specialist 8/25. I will update asap on her condition.

Nancy (ND)

 

 
Sat 8/09/08 8:03 PM

Hi Pam, I met you at the Jewel in Schaumburg last month. My sister has been diagnosed with Cervical Cancer. I practically ran home to tell her about your site. She too had told me that she felt there wasn't enough being done about Cervical Cancer. Thank you for inspiring one more woman.

Janice (IL)

 

 

Tue 06/17/08 8:05 PM

Follow up to Ellen's Comment:

Ellen, Thank you so much for sharing. I hope that you continue to be Cancer Free. But you are just that, "Cancer Free" - "In remission".  I am not a doctor, but from what I've researched and what my own doctor has told me is that in the past 30 years, the U.S. has poured $30 billion into finding a "cure" for cancer. We are no closer than we were 30 years ago and mounting numbers of people, particularly women, are contracting cancer. We can "survive" cancer, but we are never cured. I hope you continue to stay healthy, get your Pap & HPV testing done regularly and make sure young woman in your life know of the vaccine. There is no cure for Cancer but as for Cervical Cancer specifically, we know the “cause” that is why this can be a preventable disease and through awareness and knowledge can we start this journey.

Pamela Smialek
CEO & Founder

 

 

Mon 6/16/08 11:39 AM

Pamela mentioned in the About "My Day" :  I will fight this battle the rest of my life because there is "NO" cure.   Can you explain what you mean by no cure?  At 34 yrs. old, I was diagnosed, had surgery and am cancer free, so I have to ask, what do you mean by "no cure?"

Ellen (PA)

 

 
Fri 5/16/08 8:15 PM

Susan (TX) Please email me at pam@mydaylooking.org you should know exactly what you were diagnosed with and at what stage & what your choices are.  No woman should go into any surgery blind. 

Pamela Smialek
CEO & Founder

 

 

Fri 5/16/2008 9:03 AM

 

I was diagnosed with Cervical Cancer 5/8/08. All they keep saying is radical hysterectomy. Besides that I know nothing. We don't know the stage or the grade. I missed a few pap smears and went to the GYN when I felt things with my monthly's weren't normal. I am being told I will undergo surgery in 10 days.

I am a single mom to a wonderful 6 year old. Until I have this surgery I have no idea how much it has progressed. I am terrified but trying to stay hopeful.

~Susan Howard (TX)

 

 
Sat 5/10/2008 10:02 PM
 

What a wonderful place for women to come to. I also was diagnosed 3 years ago. I had skipped my pap tests for a few years, but they were able to catch it at an early stage. It is so important to take the time and get them done. I wish you all the best and will be supporting and spreading the word about this Foundation.

Casey A. (WI)

 

 
Fri 5/2/2008 12:42 PM
 

Hi, I am 33 yrs old, wife and mother of 3 wonderful kids. I have never had an abnormal Pap smear until 3/08. I had the LEEP done 2 weeks ago and went in for the follow-up appt and the doctor said that the tests came back for a rare form of Adenocarcinoma in situ. Now we are in the waiting stages of another Pap, but thank goodness mine was caught early. We need more information about this, I can't find hardly any on the internet. Thank you for this organization.

Michelle G. (CA)

 

 
Tue 4/22/2008 6:04 AM
 

Pam, this Foundation is long overdue as I too was diagnosed with Cervical Cancer on 9/13/06, as you already know, and a date hard not to forget as it was my 39th birthday.  I too had searched the web for various support groups and foundations however came up empty handed.  It was frustrating to find such little information and it made me feel like this cancer was not nearly as important as breast cancer.  I actually became angry at all the commercials supporting all the breast cancer foundations as well as watching on T.V. all the programs following newsworthy women who had been diagnosed with breast cancer.  As I sat and watched I thought, "what about me...what about what I am going through...I too had a successful surgery...with a wonderful doctor to help me through this.  But for all the women who go undiagnosed, as there are no symptoms, this could be found too late.  It is important to get the word out that early detection is key...I was lucky enough to find it in the early stages...but had I "skipped" that appointment, as we would all like too....I may not have had the same success.  So kudos to you...and I will definitely be supporting this 100%.

Kelli V. (IL)

 

 
Mon 4/21/2008 4:57 PM
 

I too was diagnosed with cervical cancer, stage 3b. I was given 6 weeks of chemo and radiation, an in hospital stay for 96 hours of internal radiation. I was always hopeful and remained positive until less than a yr later it returned. My options were few, I decided to do try an unconventional procedure which required me to fly to North Carolina to have radiation seeds imbedded into the tumor. I have been cancer free for 1yr, I remain optimistic and certainly want to do everything I can to help anyone else going through this ordeal. I made sure my humor played an integral part of my recovery, I believe its a big part in healing and coping.. so please anything I can do to help please don't hesitate to call.

Shelley (IL)

 

 
Sun 4/20/2008 4:25 PM
 
Hi, I was diagnosed with HPV two years ago and was very afraid. A virus I had never heard of; and very little information. I did my research but relied on my doctor. After two procedures and two years of checkups, I no longer have HPV and thankfully, caught the virus before turning into cervical cancer. I would love to learn more about your organization. Congratulations on starting something that will be just as obvious and acknowledged as any other cancer. Thank you.

Kelly L. W (IL)

 

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